05/04/2013
From De Anna:
"I spoke with Mark just a few minutes ago. He got home about 6pm. They are in a holding pattern right now. Didn’t start the chemo because the pneumonia is still there and they want to get more info before proceeding. Their hope is to get all the different specialists together in the same room early next week and have a frank discussion about treatment, prognosis and where to go from here, Mark plans to go back up for that meeting.
"Mark says it’s tricky because it is highly unusual for a child with Down Syndrome to relapse – so much so that they have no protocol as to the success of treatment. They don’t want to go ahead without having a clearer picture of what they’d be subjecting Hannah to and the doctors are uncertain. They are relying entirely on inspiration which they hope will come soon. They are so grateful for all the help that has been offered and those who are fasting right now."
Hannah has relapsed with ALL Leukemia after being in remission since October of 2010. She has a hard job ahead of her, but she's definitely a fighter! Hannah is a spunky 13 year old. Tons of personality, and not afraid to tell you what she thinks. She loves her family, and has plenty of family to love her. She's the 11th of 12 children, and has always been a cherished blessing since the day she was born. She loves snuggles and keeps us laughing. We love her and cant hardly bear the thought of her having to go through this again. She needs people's prayers and faith that the pain and suffering associated with this will be minimal. She is being treated at Seattle Children's Hospital.
Saturday, May 4, 2013
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