05/11/2013

Well, today went well.  Hannah made it through the toughest day ever yesterday, but today she has rallied like the determined soul she is.  This morning we were able to start to wean down on her oxygen as well as the sedative.  We have reduced the pressures in the mask and she is tolerating it better, I guess she is getting used to it.  We are hopeful to start to give her short reprieves from it to see how she does.  I feel confident it won't be but a few days and she will be off from it completely.  Hopefully we can get her back onto the cannula by tomorrow evening, that might be a little over hopeful but why not, right?

She is able to communicate and talk with us, she is still mildly sedated but it is indeed very mild, just to take the anxiety away.  He pneumonia is improving little by little.  The x-rays this morning showed slight improvement but her mood and energy level are even more encouraging.  She is pretty sassy at times!  It's great !

They started TPN feeding finally today (sugars/nutrients and lipids through the central line). I have struggled with the nutrition issue for days now and am glad to get this started.  I would like to have had the ng tube placed but it would have required too much time off from the mask.  The docs said we will start here and move to that soon.  Anyway, at least I am not starving my child anymore.  That has bugged me sooooo bad. 

The kids will be coming tomorrow sometime.  Our son Levi and daughter Camilla will be looking after things at home while the kids are away.  Mark will return with them on Sunday evening if all things continue to progress with Hannah as we hope they will.